Your daughter is beautiful, and such a sweet heart. I wish I could take her struggles for her. Poor baby. You're doing great, dad, can feel the love you have for her in your voice, in every time you touch her face. ❤
Less seizures are good that’s for sure. Good luck helping reducing them with cbd oil. Hard to watch her suffer I can imagine how difficult it is when you can’t do anything ❤️
Comparing the CBD oil options you’ve tried is so interesting to hear about, hope you can keep updating on any effects you might notice. Raelynn was so sweet right before her seizure, like she was talking to you when you said night night – or maybe she sensed a seizure coming. Hope she had sweet dreams and no more seizures the rest of the night 💙🙏
You can get pants that are like normal pants that are highly absorbent and washable. I don't know if that is useful. I can't remember the manufacturer but they may be more comfortable for her. It's just a suggestion hope you aren't offended
I have two questions about Miss Raelynn. You can tell me is personal if you find these too indiscreet.
1. Is she able to have her teeth brushed at home? Tolerate the tooth brush in her mouth etc? 2. Is the reason face gets oily a hormone issue or does she just have really soft oily skin everywhere.
I hope that’s not too indiscreet. I saw the hormone patch she has on and was thinking that’s could definitely play a role in producing face oil. And I think I’m projecting perhaps my own desires that this poor one has her mouth open so much.. is it able to be cleaned and rinsed and teeth brushed. Thanks again for all you do for this lovely young lady! God bless your family!
I recommend putting the shaker rest on her when you do her breathing treatments
You have a beautiful daughter and you are such lovely parents!
I've tried cbd oil, it tastes YUCK. Wonder if you could spritz her tongue with a light mist of water after. A small mister bottle.
Since you live in Illinois have you considered cannabis?
I am sure you can find amazing CBD products on the Weedborn website
Your daughter is beautiful, and such a sweet heart. I wish I could take her struggles for her. Poor baby. You're doing great, dad, can feel the love you have for her in your voice, in every time you touch her face. ❤
So what do you think ?
Keep the CBD oil
How about better quality pull-ups?
Raelynn is a very special young lady. From experience, CBD oil is hard on Mickey extension tubes, or can clog or it’s hard to flush afterwards.
Less seizures are good that’s for sure. Good luck helping reducing them with cbd oil. Hard to watch her suffer I can imagine how difficult it is when you can’t do anything ❤️
Comparing the CBD oil options you’ve tried is so interesting to hear about, hope you can keep updating on any effects you might notice. Raelynn was so sweet right before her seizure, like she was talking to you when you said night night – or maybe she sensed a seizure coming. Hope she had sweet dreams and no more seizures the rest of the night 💙🙏
When Raelynn was having a seizure what was the thing that you rubbed on her neck? I have seizures so i was wondering what it was.
Hope uz are ok? Sendin much love & hugz x ❤️🤗
You can get pants that are like normal pants that are highly absorbent and washable. I don't know if that is useful. I can't remember the manufacturer but they may be more comfortable for her. It's just a suggestion hope you aren't offended
Hi guys. I hope the oil starts helping her more and more. She is so sweet. I just want to hold her and hug her. Tell her Alyssa says Hi!
I have two questions about Miss Raelynn. You can tell me is personal if you find these too indiscreet.
1. Is she able to have her teeth brushed at home? Tolerate the tooth brush in her mouth etc?
2. Is the reason face gets oily a hormone issue or does she just have really soft oily skin everywhere.
I hope that’s not too indiscreet. I saw the hormone patch she has on and was thinking that’s could definitely play a role in producing face oil. And I think I’m projecting perhaps my own desires that this poor one has her mouth open so much.. is it able to be cleaned and rinsed and teeth brushed. Thanks again for all you do for this lovely young lady! God bless your family!
I love that you love her so much it sometimes makes me cry joyfull tears like today!She can be so cute that it would be dificult not to kiss her! 😭❤
When I have seizures they are at night and they happen just as I'm going to sleep and when I'm sleeping and they wake me up.