Living with Catastrophic Epilepsy (3 Brain Surgeries and 10,000s of Seizures)



At two years old Haley collapsed in her first of what would be tens of thousands of seizures. After trying every medication available …

50 Comments

  1. Hey my love I just wanted to say that if you lived in Arden forest condominiums you would have to buy instead of rent since you still need a service dog because Arden forest condominiums It's only allowing buyers to have a pet not renters

  2. Hey my love when I was 14 I was still sucking my thumb and watching Nick Jr so I understand if you're operating at 6 to 7 year old level for a 14 year old due to your seizure disorder also maybe by the time you're a little bit older you will probably start operating on a higher level

  3. So the only way you can live on your own like me is with a disability aid because if you live on your own without a disability aid and you've got sick with a very bad seizure you would probably end up dying so that's why you need a disability aid

  4. I love Haley's voice! Some might say that it's a speech impediment, but I think her manner of speaking is quite endearing. I love the calm, deliberate tone, and the added "uh" at he end of some of her words is actually a pleasant and delightful feature that is simply unique to Haley.

  5. I always wonder why people say they don't like being in a hospital. I've been in several times and other than the reason that brought me to the hospital(gall bladder surgery that kind of thing) I always enjoyed the stay itself. There was t.v. they brought in meals 3 times a day with a menu CHOICE, were quite caring and tried to make the best of your stay by keeping you warm/cool or whatever. I've always been puzzled by the jokes made about hospital food. I thought it was delicious. Am I the only one?

  6. I've heard marijuana is helpful for epilepsy. Not sure if it was supposed to treat the pain or lessen the severity/frequency.

    But I've also heard marijuana can cure or prevent cancer. I have no idea.

  7. Cartoons are for anyone. I'm 24 and I love cartoons. My favorite ones are Disney animated shorts, and Tangled the series. I also like molang and bluey. So don't feel bad about watching cartoons and liking them.

  8. I am 48 yrs old and I absolutely love cartoons!!, I really love Octonauts so much I actually have three figurines that sit on my mantle one of the captain, one of the penguin! the cat! I actually downloaded several hours of that cartoon. I love it so much I also love gumball!! And many other cartoons, so very much watching them just makes me feel happy! don’t let anybody ever tell you that watching cartoons is for children that is absolutely not true and you can absolutely use me as an example lol, I also love the ocean so much I scuba dive and would love to tell you all about the wonderful things that you can see!! when under the sea

    PS!! I would love to know what a couple of your favorite episodes of Octonauts is!?. And I will share mine with you.

  9. The way her mom talks about the “gaps” between her and her peers honestly rubs me the wrong way. I think Haley is a lot more mature than her mom realizes.

  10. Haley I'm nearly 30 years old and I still watch cartoons and I'm not ashamed to admit that , don't ever think that there for children there for everyone if you like something and others don't doesn't mean you can't like it we all like different things if we all liked the same things life would be boring , your a beautiful young lady and an inspiration to many and I love the fact you have just teached all the people veiwing this about sea/ocean animals and other cool facts and about your own life

    Chris I love your videos thank you for sharing that none of us are the same we all are different in many way but that makes everyone special and unique it means alot for me as I was always bullied for not being like everyone else and since watching your videos I've seen 100's of amazing people of all ages each one different from the last but each one so amazing sweet caring kind and lovable 🙂

  11. I am not sure the family will read this – but I have two girls with epilepsy (ages [almost] 13 and 15). If she wants someone to chat with about typical teen girl stuff from girls who know what its like with epilepsy, I’m sure they would be happy to get to know her. <3 They both have younger interests so they may be able to relate, especially my 13 year old. <3

  12. I had an aneurysm that caused seizures. I have had mini seizure. When that happened I cannot talk. I was told that is because I have speech on both sides of my brain. I taken medication for it. The doctor said I am a partial epileptic. I love cartoons especially the older ones like speed racer..

  13. Wow you can really see how intelligent her train of thought is, she just has difficulties wording them at times. Such a lovely interview and family xx

  14. You are so intelligent, articulate & listening to you speak is like a window into your creative mind. I pray for more technological/medical advances to help widen your adventures & potential in life. Blessings for the brightest future ❤

  15. I had 3 seizures when I was a baby, it can be common. Never had another one again 🤞🏻 I couldn’t imagine even one I was too young she’s so strong. But you rlly do have to stay calm cuz it could be nothing tbh or serious

  16. "A seizure is always a hard thing to see, and doesn't matter how many you've seen." No truer statement can ever be made. My youngest, our daughter, has a seizure disorder going on 15 years. Watching your child under seizure is the most heart breaking, powerless moment that I experience. These experiences are the same, every time. Haley is a dear, and beautiful, young girl with an incredibly loving family. Thank you for this video!

  17. She's like Ariel the mermaid so soft spoken and naturally gorgeous!!! Definitely would make such a cute princess cosplay!!! <3 You're strong girl as strong as they come and i'm glad you're playing for the girls team to show the world we can overcome any obstacle! Such a huge inspiration ^-^

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